Well... for the record... she has done nothing for me except stress me out about a CURE and RECOVERY. In the beginning it was to the point where I put everything else on the back burner with reading all her books, applying for her grant and even getting accepted for it. Turns out that grant is more of a marketing research study and required my daughter to be loaded up with tons of supplements without seeing a DAN. Are they stupid? Seriously? Anyhow... needless to say, I declined the grant. My daughter is not a a lab rat.
I will do anything for my daughter. I will try supplements, GFCF, equine therapy, etc. if it means it will help with her progression. BUT.... I will not jump on this self supplementing band-wagon because everyone else is doing it and it worked for someone else's kid... and because Jenny says it works.
It took 7 months of ABA and OT therapy before we started really seeing any progress with Katlynn. Then like overnight she blossomed in more then one area. Even without a speech therapist her speech just increased like crazy. I have no clue why or how and to this day it is still a mystery. I can toot my own horn and maybe say I work with her pretty much daily on little exercises with speech and social interaction. I model play and I do social stories and games. She still have a LONG way to go and she will never be recovered, or cured, but my goal is to make sure she is loved and treated as a child and as an individual.
People... it is not rocket science to know that if you start ABA and 2 weeks later you start the GFCF (which IMO can never really be bad and yet, I still don't know why I don't do it) and then 2 weeks after that you start some crazy supplement craze... then you didn't really give the ABA or the GFCF time to work it magic without the other additives. See what I am sayin here? Maybe I am just lazy for not jumping on that band wagon I talked about above. Maybe, just maybe I look like some careless mom who isn't doing all this "autism stuff" to help my daughter live at her full potential or whatever hogwash someone I out there is surely thinking about me. Jenny pushes and pushes all this different stuff claiming she recovered/cure her son Evan. Who determined it was called cured or recovered anyhow? Jenny seems to take credit for it or at least that is what I am reading between the lines? Her son still has autism. He is not cured. He has simply learned through many different tools how to maintain behaviors and control his social awkwardness through lots of lots of great therapy and supplementing. He is still living with autism just not to the severity he had when he was young. Many claim it isn't even autism that is his disability. That information I am not sure about. I really have no solid proof on that one.
Don 't get me wrong... I do respect her for initially trying to do something good for the autism community ( not like boosting her career) with her son's disability. She did make the term autism much more widely known then it was. So thank you Jenny for that. Now this talk about her possibly doing playboy again and the proceeds will go to autism. Um... Okay. Am I the only one who see this being totally wrong and more for herself then actually for the autism community. I mean this can be totally factual too... who knows. Speculation at it's finest.
I will say this, I loved her Belly Laughs, Baby Laughs and Life Laughs books. I even recommend reading them if you are newly pregnant. They were so hilarious and fun to read. I really loved and respected her after reading those, but then to go onto read her autism books... I was like, "what the #&*^?" Where the heck did the comedian go? Where did the Jenny I laughed with go?
She really should have stuck to those kinds of books.
To hell with Jenny... what about the people who have lived it? Temple Grandin is a prime example. Why wouldn't one follow her advice over a playboy model/comedian? I am just curious where the logic stands in that? Is it because she is a celebrity? Why? I really want to know.
Anyhow, I am rambling...
I am just really getting tired of the autism community not banding together and realizing that EVERY child is special and that there is no wrong way to help your child. You do what works for you and for your family. For me... it is simply trying to let my daughter live the most typical life she can without expecting too much from her, but also without letting her disability be used as an excuse. I will stand my ground when I say these kids are smart little suckers and they can manipulate like nobody business and can get away with it because they "have autism". I call BS on them.
So if you take anything from this... just know I don't judge those who follow a DAN protocol which is what this might sounds like. Not true. I just think it was pushed a little to aggressively on newly diagnosed families and Jenny books give some false hope. I will still continue to support TACA which supports Jenny and Dr. Kartzinel because I have met some really wonderful people. Without TACA, I am not sure how I would have made it trough the initial news of Katlynn's diagnosis. They don't seem to judge and genuinely want to help families help their children.
TTFN~
Summer
What a sensible view! You are absolutely right. You're more generous-spirited than I am, because I wouldn't even touch TACA. I followed your link to them and the first thing I read was "...when your child disappears into autism..." I hate the idea that someone thinks that BB's not 'there' anymore because he's 'disappeared' somehow. Maybe I just clicked at a bad time.
ReplyDeleteYour beautiful daughter seems to be doing just fine, and Jenny McCarthy can't take an ounce of credit for that!
Jenny bugs me too, but I think it's just because she's a slut (my opinion).
ReplyDeleteI tried the vitamin thing with my son and it was a huge mistake. You can read about it on my blog Post "Autism and Vitamins" in my July archive.
...and you're daughter is beautiful! I'm partial to redheads:)